Information and Resources for PD Caregivers, Care Partners, Caretakers, and Carers
What's a caregiver?
A caregiver can be a spouse, adult child, sibling, other family member (including in-laws), friend, a volunteer, or aide. Some caregivers are paid; many are not.
Caregivers can provide emotional support, financial support, hands-on care, care management, attention, and love.
Many terms are used -- caregiver, care partner, caretaker, and carer. We use themas synonyms.
Information for caregivers
Best Resources for PD Caregivers. Check out the resource list, and let us know if you think we're missing something!
Email List. Sign up for our "PD Caregivers" email list. We share tips and resources we pick up from PD caregiver-only support group meetings. We read books and articles on caregiving and summarize them for busy caregivers. We share resources on PD caregiving, caregiving generally, and dementia caregiving.
Events for caregivers
Caregiver Symposium. Please attend our PD and parkinsonism caregiver symposium on July 14, 2012 in Foster City!
Other Events. Available free of charge. Most of our events are on the Peninsula in the Bay Area. Attendance is often limited to 20-30 caregivers. Events we've held in the past were on Lewy Body Dementia, communicating with a person with dementia, mindfulness-based stress reduction, meditation, and dealing with grief and loss.
Support for caregivers
Support Groups. Find a group near you! These groups are for caregivers only:
- Parkinson's Disease caregivers
- atypical parkinsonism caregivers
- all caregivers, regardless of disorder. A few of these groups are for caregivers dealing with dementia.
Groups are wonderful places to:
- learn new information
- stay updated on research and treatment
- become motivated to maximize strengths and minimize impediments
- share tips
- socialize
- gain support
Referrals for other support
This I&R Center also provides referrals to:
- social workers, counselors, family therapists, or psychologists who are familiar with challenges faced by caregivers
- geriatric care managers
- dementia care consultants
We don't make recommendations for care facilities, care agencies, home health agencies, hospice agencies, or private caregivers. We can tell you what suggestions we've heard shared at caregiver support group meetings.
Contact Us
Contact us for information and referrals!
