APDA American Parkinson Disease Association
Information & Referral Center

Information and Resources for PD Caregivers, Care Partners, Caretakers, and Carers

What's a caregiver?

A caregiver can be a spouse, adult child, sibling, other family member (including in-laws), friend, a volunteer, or aide. Some caregivers are paid; many are not.

Caregivers can provide emotional support, financial support, hands-on care, care management, attention, and love.

Many terms are used -- caregiver, care partner, caretaker, and carer. We use them as synonyms.

Information for caregivers

Best Resources for PD Caregivers. Check out the resource list, and let us know if you think we're missing something!

Email List. Sign up for our "PD Caregivers" email list. We share tips and resources we pick up from PD caregiver-only support group meetings. We read books and articles on caregiving and summarize them for busy caregivers. We share resources on PD caregiving, caregiving generally, and dementia caregiving.

Events for caregivers

Caregiver Symposium. Please attend our PD and parkinsonism caregiver symposium on Saturday, July 12, 2014 in Foster City! If you attended our 2012 caregiver symposium, note that all of our speakers and most of the topics are different. We got great reviews in 2012, and hope to achieve even greater results in 2014.

Other Events. Available free of charge. Most of our events are on the Peninsula in the Bay Area. Attendance is often limited to 20-30 caregivers. Events we've held in the past were on Lewy Body Dementia, communicating with a person with dementia, mindfulness-based stress reduction, meditation, and dealing with grief and loss.

Support for caregivers

Support Groups. Find a group near you! These groups are for caregivers only:

Groups are wonderful places to:

Referrals for other support

This I&R Center also provides referrals to:

We don't make recommendations for care facilities, care agencies, home health agencies, hospice agencies, or private caregivers. We can tell you what suggestions we've heard shared at caregiver support group meetings.

Contact Us

Contact us for information and referrals!

Stanford Medicine Resources:

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