APDA American Parkinson Disease Association
Information & Referral Center

2014 Caregiver Events
Organized by the Stanford APDA I&R Center

AGENDA
PD AND PARKINSONISM CAREGIVER SYMPOSIUM

July 12, 2014 - 8am to 4:15pm
Crowne Plaza Foster City

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8:00am Registration, Continental Breakfast, Visit Exhibitor Tables
9:00am Welcome and Opening Remarks
Robin Riddle, Coordinator, American Parkinson Disease Association Information & Referral Center at Stanford
9:15am What Caregivers Can Do to Help Address Motor and Autonomic Symptoms of PD and Atypical Parkinsonism
Rosalind Chuang, MD, movement disorder specialist, Stanford Movement Disorders Center
10:15am Break (15 minutes)
10:30am Three options for breakout sessions:
 
A:  Self-Care for the PD/Parkinsonism Caregiver
Explore the insights into self-care and resilience shared by PD and parkinsonism caregivers who attend a caregiver-only support group meeting.
Susan Weisberg, LCSW, Social Worker and Facilitator, Stanford's Parkinson's caregiver support group 
 
B:  It Takes Two - Coping with Dementia
Tips for understanding the behavior of a loved one with dementia, and strategies for communicating so you remain connected.
Christina Irving, LCSW, Family Consultant, Family Caregiver Alliance, San Francisco
 
C:  Care Options - Home Care, Home Health, Care Facilities, and Hospice
Overview of in-home care, senior villages, adult day care, respite, facility-based care, and hospice.  Learn the differences between home care and home health; full-service agencies, referral agencies, and private hire aides.
Michelle Rogers, Franchise Owner, Home Instead Senior Care, Mountain View   (serving the Mid- to South Peninsula)

 
11:10am Change rooms, as needed (10 minutes)
11:20am Three options for breakout sessions:

A:  Positive Family Communication
Suggestions for how to improve family dynamics through positive communication.
Doris Bersing, PhD, President & CEO, Living Well Assisted Living at Home, San Francisco (serving the Bay Area)

B:  Exit Strategies - Getting Your Affairs In Order
Overview of what needs to be done when a family member is given a neurological diagnosis, and the immediate tasks to be handled upon death.
Jeanne Smith, Professional Estate Organizer, Exit Stage Right, LLC, Palo Alto (serving the Bay Area)

C:  Anticipatory and Unacknowledged Grief
Explore the concept of loss that caregivers can experience even before their loved one has died, and some helpful coping mechanisms.
Nina Poletika, MFT, CT, Psychotherapist, Family Consultant on Grief & Loss and Dementia, Palo Alto (serving the the Bay Area)

Noon Lunch and Visit Exhibitor Tables
1:00pm Advance Care Planning for PD and Atypical Parkinsonism Families
Grace Liang, MD, movement disorder specialist, The Parkinson's Institute, Sunnyvale
2:00pm Break  (15 minutes)
Last chance to visit exhibitor tables
2:15pm

Three options for breakout sessions:

A:  Paying for Long-term Care Without Going Broke
Discuss how caregivers can pay for long-term care with public benefits and asset management, and how to prepare for the future.
Harold Lustig, CLU, ChFC, Financial Advisor and Founder, Safe Money Strategies, San Rafael (serving the North Bay)

B:  Mindfulness-Based Care
Explore the concept of mindfulness, and how all caregivers can benefit from "being in the present" with their loved one.
Marguerite Manteau-Rao, LCSW, Founder, Mindfulness-Based Dementia Care Program, UCSF Osher Center for Integrative Medicine and Presence Care Project

C:  The Many Faces of a Caregiver
Overview of the many roles a PD/parkinsonism caregiver plays -- family member, chauffeur, aide, social planner, therapist, pharmacist, nurse, physician, etc. -- and how to cope.
Elaine Lanier-Bohan, RN, MS, SFVA Parkinson's Center and UCSF, San Francisco

2:55pm Change rooms, as needed  (10 minutes)
3:05pm What Caregivers Can Do to Help Address Cognitive, Memory & Mood Symptoms of PD and Atypical Parkinsonism
Kathleen Poston, MD, MS, movement disorder specialist, Stanford Movement Disorders Center
4:05pm Closing Remarks and Evaluations

 

Symposium Flyer to Spread the Word

 

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