APDA American Parkinson Disease Association
Information & Referral Center

PD Caregiver Resources

Here are some print, online, and video resources that are specific to Parkinson's Disease caregivers:

Best Publications

"Caring for the Care Partner"
Published by Parkinson's Disease Foundation, 2011.
In this two-page fact sheet, readers are told: "You may not think of yourself as a care partner or see the new tasks in your life...as acts of caregiving. ...[Because] the role of the PD care partner lasts for decades, ... care partners ... can benefit from understanding how this role affects their lives in the long term and how to ask for help."

"Coping With Dementia: Advice for Caregivers"

Published by Parkinson's Disease Foundation, 2003.
This two-page fact sheet draws upon lessons from the Alzheimer's community. On the second page is a list of "10 Tips for Managing Slowed Communication or Thinking."

"Keys to Caregiving"
Published by American Parkinson Disease Association, 2007.
In this four-page educational supplement, readers are encouraged to educate yourself; understand that PD is unpredictable; acknowledge your feelings; develop coping strategies; and ask for and accept help.

"Parkinson's Disease: Caring and Coping"
Published by National Parkinson Foundation, July 2007.
This purple-covered 72-page booklet has chapters on Parkinson partners, the extended family, activities of daily living, taking care of business, and building a support network.

Best Online Publications

"Guide for Caregivers"
Published by Michael J. Fox Foundation. Last updated July 2011.
Authors of this webpage are those with PD, offering tips and suggestions for dealing with the emotional, social, and basic medical issues of caregiving. Questions addressed include: "So, if physical problems are minimal, what kind of help does a caregiver provide?" and "It sometimes seems that my whole life revolves around caring for my PWP, and I feel frustrated, angry, and worn out. Do other caregivers ever feel this way, and is there anything I can do about it?"


This list compiled by Robin Ridle with the Stanford APDA Information & Referral Center, April 2012.

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