APDA American Parkinson Disease Association
Information & Referral Center

Parkinson's Caregiver-Only Support Groups

Caregivers need to have their own support group meetings or gatherings because they need to vent, share, learn tips and resources, and receive support from others walking the same path. Ideally, a caregiver to someone with Parkinson's Disease can attend a PD-specific caregiver support group. Or someone dealing with Lewy Body Dementia can attend an LBD-specific caregiver support group. And so on.

There are only eleven PD caregiver-only support groups in the Bay Area and four more in Northern California. And there is only one atypical parkinsonism (DLB, PSP, CBD, MSA) caregiver-only support group in the Bay Area.

See our list of general caregiver support groups

See our list of dementia caregiver support groups


PD CAREGIVER-ONLY SUPPORT GROUPS - BAY AREA

Belmont - PD Caregivers Support Group (Organized by Stanford Parkinson's Community Outreach)
1st Thursday, Noon - 2pm
Silverado Senior Living Belmont Hills, 1301 Ralston Ave., Belmont 94002
Group contact: Steven Russell [swrussell], 650-995-6379, Stanford Parkinson's Community Outreach
Facilitator: Ann Blick Hamer, LCSW
Note: Must RSVP before attending so meeting details can be confirmed, and directions for parking and finding the meeting room can be shared.


Daly City - PD Caregivers Support Group (Organized by Stanford Parkinson's Community Outreach)
2nd Tuesday, Noon - 2pm
Mission Villa Memory Care, 995 E. Market St., Daly City 94014
Group contact: Steven Russell [swrussell], 650-995-6379, Stanford Parkinson's Community Outreach
Facilitator: Carley Rencher Chen, LCSW
Note: Must RSVP before attending so meeting details can be confirmed, and directions for parking and finding the meeting room can be shared.


Berkeley - PD Care Partners Support Group (Organized by PDActive)
2nd Thursday, 3 - 4:45pm
North Berkeley Senior Center, 1901 Hearst Ave. (at MLK, Jr. Way), Berkeley 94709
Group contact: Joyce Sakai [caregivers pdactive.org], 510-525-5166
Note: Please RSVP before attending as meeting details may occasionally change.


Los Altos - PD Caregivers Support Group
(Now organized by Stanford Parkinson's Community Outreach)
2nd Tuesday, 10:30am - Noon
Foothills Congregational Church, 461 Orange Ave., Los Altos 94022
Group contact: Denise Dagan [ddagan], 650-867-7419, Stanford Parkinson's Community Outreach
Facilitator: Susan Weisberg, LCSW
Note: Please RSVP before attending as meeting details may occasionally change.


Menlo Park - PD Caregivers Support Group (Organized by Stanford Parkinson's Community Outreach)
2nd Friday, Noon - 2pm
St Bede's Episcopal Church, 2650 Sand Hill Rd., Menlo Park 94025
Group contact: Robin Riddle [rriddle], Stanford Parkinson's Community Outreach, phone 650-724-6090
Facilitator: Susan Weisberg, LCSW
Note: Must RSVP before attending as meeting details may occasionally change and directions for parking and finding the meeting room will be shared.


Menlo Park - PD Caregivers Support Group
(Organized by Stanford Parkinson's Community Outreach)
3rd Tuesday, Noon - 2pm
St Bede's Episcopal Church, 2650 Sand Hill Rd., Menlo Park 94025
Group contact: Robin Riddle [rriddle], Stanford Parkinson's Community Outreach, phone 650-724-6090
Facilitator: Natalie McKelvey, LCSW
Note: Must RSVP before attending as meeting details may occasionally change and directions for parking and finding the meeting room will be shared.


Mill Valley - PD Caregivers Break-out Session (Organized by Marin County Parkinson's Support Group)
4th Friday, 2 - 3pm (2nd hour of PD support group meeting)
The Redwoods, 40 Camino Alto, Mill Valley 94941
Facilitator and group contact: Joann Katz, MFT [joannkatzmft gmail.com]
Note: No August or December meeting.


San Jose (The Villages) - PD Caregivers Support Group

1st Wednesday, 10 - 11am
The Villages Golf and Country Club, Cribari Center, Redwood Room, 5000 Cribari Lane, San Jose 95135
Group contact: Alice Pratte, 408-223-8033
Note: Must RSVP before attending each meeting as access pass is required to enter gated community.


San Jose (Willow Glen) - PD Caregivers Support Group

4th Wednesday, 1:30 - 3:30pm
St. Francis Episcopal Church, 1205 Pine Ave., San Jose 95125
Group contact: Charmaine Eng, 408-723-8116


Walnut Creek - PD Caregivers Support Group

Mostly 3rd Saturday, 9 - 10am
Grace Presbyterian Church, 2100 Tice Valley Blvd., Walnut Creek 94595
Group contact: Norman Kibbe [nkibbe aol.com], 925-935-0322
Note: No 9am meeting if 3rd Saturday 10am - Noon meeting has breakout groups.


PD CAREGIVER-ONLY SUPPORT GROUPS - NORTHERN CALIFORNIA

Davis - PD Caregivers Support Group
2nd Wednesday, 1:30 - 3pm
Davis Senior Center, 646 A St., Davis 95616
Group contact: Karen Eagan [keagan stmarys-ca.edu], 530-564-4323


Lodi - PD Caregivers Support Group

1st Monday, 10am - noon
Home of group leader
Group contact: Jean Whitted [bjwhitted hotmail.com], 209-368-2809


Sacramento - PD Caregivers Lunch Bunch
3rd Tuesday, 11am - 1pm
Ettore's, 2376 Fair Oaks Blvd., Sacramento 95846
Group contact: Anne Spaller, MFT [aspaller deloro.org], 916-728-9333


Santa Rosa - PD Caregivers Break-out Session (Organized by Sonoma County Parkinson's Support Group)
1st Saturday, 2 - 3pm (2nd hour of PD support group meeting) - Feb, Mar, Apr, May, Jun, Oct, Nov
2nd Saturday, 2 - 3pm (2nd hour of PD support group meeting) - Aug, Dec
Christ Church United Methodist, 1717 Yulupa Ave., Santa Rosa 95405
Caregiver group contact: Arlene Irizary [irizary juno.com], 707-887-7451
Note: No meeting in January, July, or September


ATYPICAL PARKINSONISM CAREGIVER-ONLY SUPPORT GROUP- BAY AREA

San Mateo - Atypical Parkinsonism Support Group (Organized by Brain Support Network)
Caregiver-only meetings about every 6 weeks (please call for schedule)
Sundays, 5 - 7pm
Restaurant in San Mateo, right off of Highway 101 and close to Highway 92
Group contact: Robin Riddle [robin.riddle brainsupportnetwork.org], Brain Support Network, 650-814-0848
Facilitators: Caregivers whose loved ones have passed away and the
diagnosis was confirmed through brain donation

Note: Atypical Parkinsonism includes Dementia with Lewy Bodies (or Lewy Body Dementia), Progressive Supranuclear Palsy, Multiple System Atrophy, and Corticobasal Degeneration. Must RSVP before attending to be sure there are no schedule changes and that an accurate headcount is given to the restaurant.


This list compiled by Robin Riddle of Stanford's Parkinson's Community Outreach, March 2012. Last updated November 2017.

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