APDA American Parkinson Disease Association
Information & Referral Center

Caregiver-Only Support Groups for Those Dealing with Dementia (not PD-specific)

Many Parkinson's or parkinsonism (DLB, PSP, or CBD) caregivers are dealing with dementia. Since there are so few PD caregiver-only support groups and atypical parkinsonism caregiver support groups, caregivers should consider attending general dementia caregiver support groups.

The dementia caregiver support groups listed below welcome caregivers of all dementia types. At any given time, there may be no one dealing with Parkinson’s Disease Dementia, Lewy Body Dementia, Dementia with Lewy Bodies, Progressive Supranuclear Palsy, or Corticobasal Degeneration attending these meetings but the group make-up changes over time. You may not be looking for disorder-specific information anyway.

Some groups may be specifically for adult children or spouses. There is no cost, unless indicated. All have a "drop-ins welcome" policy, unless indicated. And all groups meet monthly, unless indicated.


Counties: ALAMEDA | CONTRA COSTA | MARIN | SAN FRANCISCO | SAN MATEO | SANTA CLARA | SOLANO | SONOMA

ALAMEDA COUNTY

Alameda
2nd Thursday, 10 - 11:30am
Mastick Senior Center, Classroom D, 1155 Santa Clara Ave., Alameda 94501
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 925-284-7942

Berkeley
1st Wednesday, 7 - 9 pm
Alzheimer’s Services of the East Bay, 2320 Channing Way, Berkeley 94710
Group contact and facilitator: Deanna Randall [deanna.randall alz.org], MSW, Alzheimer's Association, 415-472-4340 ext. 1403

Fremont
Last Wednesday, 7 - 9pm
Washington Hospital West, Conf. Rm. Anderson B, 2500 Mowry Ave., Fremont 94538
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 925-284-7942

Hayward
3rd Tuesday, 4 - 5:30pm
Alzheimer’s Services of the East Bay, 561 A St., Hayward 94541
Group contact and facilitator: Kate Saylor [kate aseb.org], MSW, Alzheimer’s Services of the East Bay, 510-888-1411 ext. 307

Hayward
4th Tuesday, 6 - 7:30pm
Kaiser Permanente, Medical Office Bldg., Rm. M3, 27303 Sleepy Hollow, Hayward 94545
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900

Oakland - Caregiver spouses/partners of those with advanced AD and other dementias
1st and 3rd Wednesday, 1 - 3pm
Sagrada, 4926 Telegraph Ave., Oakland 94609
Group contact and facilitator: Michaele O'Leary-Reiff [melizaoleary sbcglobal.net], RN, 510-798-9381
Fee: $15 per session, which includes fee for use of space

Oakland
2nd Tuesday, 10:30 - noon
Kaiser Hospital, Fabiola Bldg., Ground Fl., Rm. G26, 3801 Howe St., Oakland 94611
Group contact and facilitator: LoWanda Moore, MSW, Kaiser Permanente, 510-752-7682

Oakland - Spouse caregivers
4th Tuesday, 10:30 - noon (No meeting in December)
Kaiser Hospital, Fabiola Bldg., Ground Fl., Rm. G26, 3801 Howe St., Oakland 94611
Group contact and facilitator: LoWanda Moore, MSW, Kaiser Permanente, 510-752-7682

Oakland - En Español (Spanish-language group)
4th Tuesday, 5:30 - 7pm
Fruitvale San Antonio Senior Center, Café y Charla, 3301 E. 12th St., Suite 201, Oakland 94601
Group contact and facilitator: Ernesto Lopez Hidalgo [ehidalgo alz.org], Alzheimer's Association, 800-272-3900

Oakland - Non-spouse family members and friends
4th Thursday, 10:30am - noon
Kaiser Hospital, Fabiola Bldg., Ground Fl., Rm. G26, 3801 Howe St., Oakland 94611
Group contact and facilitator: LoWanda Moore, MSW, Kaiser Permanente, 510-752-7682

San Leandro
1st Monday, 7 - 9pm, no meeting in December
Creekside Community Church, 951 MacArthur Blvd, San Leandro 94577
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900


CONTRA COSTA COUNTY

Antioch
2nd and 4th Wednesdays, 1:30 - 3pm
Antioch Senior Center, 415 West 2nd St., Antioch 94509
Group contact and facilitator: Ernesto Lopez Hidalgo [ehidalgo alz.org], Alzheimer's Association, 800-272-3900

Brentwood
2nd Thursday, 7 - 8:30pm
Neighborhood Church, 50 Birch St., Brentwood 94513
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 925-284-7942

Concord - En Español (Spanish-language Group)
1st Wednesday, 6:30 - 8pm
La Clinica de la Raza, 200 Sierra Road, Concord 94518
Group contact and facilitator: Ernesto Lopez Hidalgo [ehidalgo alz.org], Alzheimer's Association, 800-272-3900

Lafayette
3rd Monday, 1:30 - 3pm
Alzheimer’s Association, Conf. Rm., 3675 Mt Diablo Blvd., Suite 250, Lafayette 94549
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900

Orinda - Lamorinda caregiver group
1st and 3rd Tuesdays, 11 - 12:30pm
Holy Shepherd Lutheran Church, 433 Moraga Way, Orinda 94563
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900

Pleasant Hill - Most participants are caregivers to those with dementia
3rd Wednesday, 1:30 - 3:30pm
The Chateau III, 175 Cleaveland Rd., Pleasant Hill 94523
Group contact: Alison Wall [awall carltonseniorliving.com] or Lisa Spivey [lspivey carltonseniorliving.com], Chateau III, 925-935-1001
Group facilitator: Vickie Bellingham, RN, geriatric care manager, ElderCare Services
Must RSVP prior to each meeting for facility access. Ring front doorbell on arrival for receptionist escort.

Pleasant Hill
3rd Wednesday, 4:30 - 6pm
Mt. Diablo Center for Adult Day Health, 490 Golf Club Rd., Pleasant Hill 94523
Group contact and facilitator: Betsy Flathers [bflathers rsnc-centers.org], 925-682-6330

Richmond
Last Wednesday, 2 - 4pm
West County Adult Day Care Center, 1015 Nevin St., Suite 108, Richmond 94801
Group contact and facilitator: Deborah Janke [deborahpricejanke att.net], Executive Director, West County Adult Day Care Center, 510-235-6276

San Ramon
2nd Monday, 7 - 9pm
San Ramon Senior Center, 9300 Alcosta Blvd., San Ramon 94583
Group contact: Stephen Ellis, 925-382-1152

Walnut Creek
1st Tuesday, 10:30 - 12:30pm
Shell Ridge Community Church, 200 La Casa Via, Walnut Creek 94598
Group contact and facilitator: Grace Liu [grace.liu alz.org], MSW, ASW, Alzheimer's Association, 800-272-3900

Walnut Creek
2nd Thursday, 6 - 7pm
Eldercare Services, 1808 Tice Valley Rd. (Tice Valley Plaza), Walnut Creek 94595
Group contact: Eldercare Services, 925-937-2018


MARIN COUNTY

Mill Valley
4th Wednesday, 10 - 11:30am
The Redwoods, 2-4 Lounge Room, 40 Camino Alto, Mill Valley 94941
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

Novato
2nd Wednesday, 10 - 11:30am
Margaret Todd Senior Center, 1560 Hill Rd., Novato 94947
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

Novato - Husband caregivers
3rd Wednesday, 11am - 12:30pm
Margaret Todd Senior Center, 1560 Hill Rd., Novato 94947
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

San Rafael - Wife caregivers
1st Tuesday, 10am - noon
Alzheimer’s Association San Rafael Office, 4340 Redwood Hwy., Suite D-314, San Rafael 94903
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

San Rafael - Adult children caregivers
1st Tuesday, 7 - 8:30pm
Alzheimer’s Association San Rafael Office, 4340 Redwood Hwy., Suite D-314, San Rafael 94903
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

San Rafael - Husband caregivers
2nd Wednesday, 12:30 - 2:00pm
Alzheimer’s Association San Rafael Office, 4340 Redwood Hwy., Suite D-314, San Rafael 94903
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

San Rafael - Spouse/Partner caregivers to those with mid- to late-stage AD and related dementias
3rd Tuesday, 10 - 11:30am
Alzheimer’s Association San Rafael Office, 4340 Redwood Hwy., Suite D-314, San Rafael 94903
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

San Rafael - Adult children caregivers
3rd Wednesday, 6:30 - 8:30pm
Alzheimer’s Association San Rafael Office, 4340 Redwood Hwy., Suite D-314, San Rafael 94903
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

San Rafael - Most participants are caregivers of those with memory loss
3rd Thursday, 11am - 12:30pm
Lucas Valley Community Church, 2000 Las Gallinas Ave., San Rafael 94903
Group contact and co-facilitator: Jen Tripathy [jtripathy senioraccess.org], Senior Access of Marin, 415-491-2500 ext. 14
Call in advance to arrange for free respite care for care recipients during meetings


SAN FRANCISCO COUNTY

San Francisco
1st Saturday, 10:30am - noon
Institute on Aging, 3575 Geary Blvd., San Francisco 94118
Group contact and facilitators: Don Wendell [dwendell ioaging.org], Institute on Aging, 415-750-4146 and Maxine Silver [msilver ioaging.org], Institute on Aging 415-750-4145

San Francisco
2nd Thursday, 1 - 2:30 p.m.
Jones United Methodist Church, 2nd Fl. Conf. Rm., 1975 Post St., San Francisco 94115
Group contact and facilitator: Robert Williams, 415-921-7653

San Francisco - Cantonese-speaking caregivers
2nd Saturday, 1 - 2:30pm
Chinese Community Health Resource Center, 728 Pacific Ave., Suite 115, San Francisco 94133
Group contact and facilitator: Xiaorong Ou [xou alz.org], Alzheimer's Association, 800-272-3900

San Francisco - Cantonese-speaking caregivers
3rd Wednesday, 5 - 6:30pm
Self Help for the Elderly, Adult Day Care Services, 408 22nd Ave., San Francisco 94121
Group contact and facilitator: Lydia Tsung [lydiat selfhelpelderly.org], MSW, Self Help for the Elderly, 415-677-7556

San Francisco - LGBT caregivers
4th Wednesday, 6 - 7:30pm
Openhouse, 1800 Market St., Rm 306, San Francisco 94102
Group contact and facilitator: Erica J. Erney [erica.erney kp.org], LCSW, 408-530-6906


SAN MATEO COUNTY

Burlingame
1st Wednesday, 7 - 9pm
Senior Focus, 1720 El Camino Real, Burlingame 94010
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900

Menlo Park
Every Thursday, 1 - 2:30pm
Peninsula Volunteers Rosener House, 500 Arbor Rd, Menlo Park 94025
Group contact: Sarah Schachter [sschachter penvol.org], MSW, 650-322-0126
Group facilitators: Sarah Schachter, MSW
Free respite provided. Call or email for more information.

Redwood City
1st Thursday, 6 - 7:30pm
Kaiser, Poplar Bldg, Large Conf. Room, 1125 Marshall St., Redwood City 94063
Group contact: Lee Martin-Jones [lee.martin-jones kp.org], LCSW, 650-299-4456
Group facilitators: Lee Martin-Jones, LCSW, and Traci Mandell

San Carlos - Caregivers of those with memory problems or dementia
1st Tuesday, 1 - 2:30pm
Catholic Charities CYO - San Carlos Adult Day Services, in First Baptist Church, 787 Walnut St., San Carlos 94070
Group contact: Nancy Keegan [nkeegan cccyo.org], 650-592-9325
Group facilitator: Carly Cullimore, MSW, San Carlos Adult Day Services
Call in advance to arrange for free respite care for care recipients during meetings.

San Mateo
3rd Wednesday, 7 - 9pm
Mills Hospital, 100 South San Mateo Dr., San Mateo 94401
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900
Lok for posted signs for room location.

South San Francisco
1st and 3rd Fridays, 10 - 11:30am
Magnolia Senior Center, 601 Grand Ave, 3rd Fl., South San Francisco 94080
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900


SANTA CLARA COUNTY

Cupertino
3rd Thursday, 1:30 - 3pm
St. Jude’s Episcopal Church, Fireside Rm., 20920 McClellan Rd., Cupertino 95014
Group contact and facilitator: Charlie Neimeyer [liveoakcharlie hotmail.com] 408-973-0905

Los Gatos
3rd Tuesday, 1:30 - 3pm
United Methodist Church, Art Gallery Rm., 111 Church St., Los Gatos 95030
Group contact and facilitator: Alexandra Morris [alexandra.morris alz.org], Alzheimer's Association, 800-272-3900

Los Gatos
2nd Friday, 10am - noon
Congregation Shir Hadash, Classroom 2, 20 Cherry Blossom Ln., Los Gatos 95032
Group contact: Nadine Toby [nadine shirhadash.org], 408-358-1741 ext. 5
Group facilitator: Tami Anastasia, MA, CSA

Mountain View
3rd Wednesday, 7 - 9pm
El Camino Hospital, Main Hospital, Conf. Room A, 2500 Grant Rd., Mountain View 94040
Group contact and facilitator: Edna Wallace, MFT, 650-940-7137

Mountain View
1st Thursday, 4:30 - 6:30pm
El Camino YMCA, Park Pavilion, Downstairs, Room K, 2400 Grant Rd., Mountain View 94040
Group contact and facilitator: Kathy Taylor, 650-940-7137
Enter meeting through door rear of building.

San Jose/Evergreen - Family caregivers of older loved ones with Alzheimer's or dementia, residing in Santa Clara County
2nd Monday, 3:30 - 5pm
St. Francis of Assisi Parish, 5111 San Felipe Rd., San Jose 95135
Group contact: Milton Cadena [mcadena catholiccharitiesscc.org], Catholic Charities of Santa Clara County, 408-325-5237
Group facilitator: Nancy Tamburello, Adult Day Care Program Supervisor, Catholic Charities of Santa Clara County, 408-270-4900

San Jose
2nd Monday, 7 - 8:30pm
Kaiser San Jose Medical Center, 275 Hospital Parkway, Medical Office Bldg., 4th Fl. Rm. 460-1, San Jose 95119
Group contact and facilitator: Courtney Jaffe [courtney.e.jaffe kp.org], MS, RN, GCNS, Kaiser Permanente, 408-972-6301

San Jose - Chinese-speaking caregivers
Last Saturday, 10:30am - noon
John XXIII Multi-Service Center, 195 E. San Fernando St., San Jose 95112
Group contact and facilitator: Peining Chang [pchang alz.org], MSW, ASW, Alzheimer's Association, 800-272-3900

San Jose - Japanese or English-speaking caregivers
Yu-Ai-Kai, Japanese American Community Senior Center, 588 N. 4th St., San Jose 95112
Group contact English language: Barbara Masterson [bmasterson yuaikai.org], Japanese American Community Senior Center, 408-294-2505
Group contact Japanese language: Emi or Yuko [enagai yuaikai.org], Japanese American Community Senior Center, 408-294-2505
Call for meeting dates. Groups run in 8-week sessions. Advance rregistration is required.

Santa Clara
2nd Tuesday, 7 - 8:30pm
Kaiser Permanente, Hospital Bldg., 1st Fl., Room 125, 700 Lawrence Expressway, Santa Clara 95051
Group contact: Erica J. Erney [erica.erney kp.org], LCSW, Kaiser Permanente, 408-530-6906
Group facilitators: Erica Erney, LCSW, Kaiser Permanente and Kate Onstott, RN, MS, GCNS, Kaiser Permanente

Sunnyvale - Family caregivers of older loved ones with Alzheimer's or dementia, residing in Santa Clara County
2nd Tuesday, 3:30 - 5pm
First United Methodist Church, 535 Old San Francisco Rd., Sunnyvale 94086
Group contact: Milton Cadena [mcadena catholiccharitiesscc.org], Catholic Charities of Santa Clara County, 408-325-5237
Group facilitator: Ginger McClure [gmcclure catholiccharitiesscc.org],, Adult Day Care Program Supervisor, 408-530-8734

Sunnyvale - Mandarin-speaking family caregivers of older loved ones with Alzheimer's or dementia, residing in Santa Clara County
4th Tuesday, 3:30 - 5pm
First United Methodist Church, 535 Old San Francisco Rd., Sunnyvale 94086
Group contact: Milton Cadena [mcadena catholiccharitiesscc.org], Catholic Charities of Santa Clara County, 408-325-5237
Group facilitator: Ching-Ming Hsueh, Adult Day Care Program Supervisor, Catholic Charities of Santa Clara County, 408-282-1134


SOLANO COUNTY

Rio Vista
3rd Friday, 9:30 - 11am
Rio Vista Senior Center, 25 Main St., Rio Vista 94571
Group contact: Heather Gray [heather.gray alz.org], Alzheimer's Association, 800-272-3900

Vacaville
2nd Wednesday, 7 - 9pm
Vaca Valley Hospital Campus, Adult Day Center, 1020 Nut Tree Road, Vacaville 95687
Group contact and facilitator: Sandi Perez [sperez northbay.org] 707-624-7970


SONOMA

Santa Rosa
2nd Tuesday, 10 - 11:30am
Oakmont Gardens, 301 White Oak Dr., Santa Rosa 95409
Group contact and facilitator: Lauren Hibdon [lhibdon alz.org], MS, Alzheimer's Association, 707-573-1210

Santa Rosa
3rd Tuesday, 5:30 - 7pm
Alzheimer’s Association Santa Rosa Office, 1211 No. Dutton Ave., Suite A, Santa Rosa 95401
Group contact and facilitator: Lauren Hibdon [lhibdon alz.org], MS, Alzheimer's Association, 707-573-1210

Santa Rosa
3rd Thursday, 10 - 11:30am
Alzheimer’s Association Santa Rosa Office, 1211 No. Dutton Ave., Suite A, Santa Rosa 95401
Group contact and facilitator: Lauren Hibdon [lhibdon alz.org], MS, Alzheimer's Association, 707-573-1210

Sonoma
4th Friday, 10 -11:30am
Vintage House Senior Center, 264 First St. East, Sonoma 95476
Group contact and facilitator: Deanna Randall [drandall alz.org], MSW, Alzheimer's Association, 415-472-4340

St. Helena
1st Thursday, 3 - 4:30pm
Rianda House, 1475 Main St., St. Helena 94574
Group contact and facilitator: Lauren Hibdon [lhibdon alz.org], MS, Alzheimer's Association, 707-573-1210


This list last updated by Robin Riddle and Denise Dagan of Stanford's Parkinson's Community Outreach, November 2017. compiled by Beth Miller, June 2014.

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