APDA American Parkinson Disease Association
Information & Referral Center

2012 Events
Organized by the Stanford APDA I&R Center

ATYPICAL PARKINSONISM (DLB, PSP, MSA, CBS/CBD) SYMPOSIUM

October 13, 2012 - 8am to 5pm
Crowne Plaza SFO in Burlingame

When:
Saturday, October 13, 2012
8am to 5pm

Agenda »

Where:
Crowne Plaza SFO
1177 Airport Blvd.
Burlingame, CA 94010
Directions »

Registration »
Early bird registration for families ends on 9-16-12

Flyer »

REGISTER NOW!

Join us Saturday 10-13-12 for an all-day atypical parkinsonism symposium, to be held at the Crowne Plaza SFO in Burlingame.

The term atypical parkinsonism refers to four disorders:

Other umbrella terms sometimes used are Parkinson's Plus or parkinsonian syndromes.

Who is Invited? Anyone dealing with these disorders -- those with a diagnosis, family caregivers (current caregivers and former caregivers), other family members, and friends.

Register Now as space is limited. There is no registration at the door. For those with the diagnosis, family members, and friends, the deadlines and fees are:

September 16 - $35 early-bird registration deadline
September 17 - $50 registration fee
October 5 - final registration deadline

Registration is online only. If you need help registering or don't have internet access, three staff members are ready to help. This takes no more than 10 minutes. Please contact Robin Riddle [rriddle]. We will do our best to help, even in the evenings and on weekends.

Available Now - Registration for Professionals is open for those interested in continuing education units or professional development units. CEUs or PDUs have been approved for these credentials -- LCSW, MFT, RN, CNA/HHA, NHA, and OT. CEUs are pending for RCFE Administrators. Note that the fees and deadlines are slightly different than shown for family members above.

We were unable to arrange for CEUs for PT, SLP, or PSYCH. If you know an organization that could sponsor these CEUs for our future events, please share your knowledge.

Professionals not wanting CEUs or not eligible for CEUs can register on September 18th, through the Family Registration site.

Exhibitor and Sponsor Registration. Note that the fees and deadlines are different than listed for family members above.

Great Speakers Lined Up. The morning's speakers are world experts and Northern California experts on the four disorders.

litvanfotoThe keynote speaker is Irene Litvan, MD. Dr. Litvan is the Tasch Professor in Parkinson Disease Research and Director of the UC San Diego Movement Disorder Program. She has more than 25 years of experience in movement disorders, adult neurology, and psychiatry. From 2002 to 2011, she was the Director of the Division of Movement Disorders at the University of Louisville, KY. While in Louisville, she established a neurological research foundation with particular focus on CBD. She is the principal investigator behind the NIH-funded genetics and environmental study of PSP. And she co-authored the PSP clinical diagnostic criteria.

Dr. Litvan will provide an overview of these four disorders -- the overlapping diagnostic criteria and the multiple subtypes. She will address how biomarkers may one day improve the accurate diagnosis of these disorders.

Following Dr. Litvan, we will break into four groups, each group hearing from an MD specialist on one of the four disorders. The MDs will each speak about the treatment of these disorders and some of the research underway.

The DLB group will hear from Geoffrey Kerchner, MD, PhD. Dr. Kerchner is a behavioral neurologist at Stanford's Memory Disorders Center. He is currently conducting research on DLB, Alzheimer's Disease, and other age-related neurodegenerative disorders.

The PSP group will hear from Adam Boxer, MD, PhD. Dr. Boxer is a neurologist at UC San Francisco's Memory and Aging Clinic. He is the worldwide principal investigator on the Davunetide trial in PSP.

The MSA group will hear from Kathleen Poston, MD, MS. Dr. Poston is a neurologist specializing in movement disorders at Stanford's Movement Disorders Center. She is the only Bay Area neurologist who has published research on MSA.

The CBD group will hear again from Dr. Litvan -- a world expert on CBD.

Lunch. We are opposed to sandwiches at lunch! We have a nutritious, hot lunch planned. At our July PD/parkinsonism caregiver event, the audience applauded the lunch offerings. We strive for the same response in October.

One suggestion for improvement made at our July caregiver symposium was that we seat people by disorder. Depending on the interest level and how willing people are to change tables, we may try this in October. Probably some will want to participate and some will not.

Practical Focus to the Afternoon. After hearing from MDs in the morning, the afternoon will turn to practical ways of dealing with these disorders.

Our first speaker will be Erica Pitsch, PT, DPT. She's a PT at UCSF's PhysFit Health and Wellness Center. She will speak on the movement and balance issues associated with the atypical parkinsonism disorders. She will address mobility devices and aids, such as a gait belt, as well as exercise.

Our second speaker will be Megan DePuy, MBA/HCM, MS, CCC-SLP. She's a senior speech-language pathologist at Stanford's Outpatient NeuroRehabilitation Department. She will speak on the swallowing and voice issues associated with the atypical parkinsonism disorders. She will address topics such as thickening liquids, diet modification, and feeding tubes. She will show some assistive devices and technologies.

dschemppfotoOur final speaker will be Donna Schempp, LCSW. She has over 20 years experience in the field of aging as a home care and hospice social worker, director of senior services, and program director at Family Caregiver Alliance. She will address resilience in the face of these neurodegenerative conditions. She will focus on whether patients, caregivers, family members, and professionals can use coping strategies as they are challenged by these disorders.

Agenda for the day's program

Two Notes About Terminology

What about Lewy Body Dementia? We are using the term Dementia with Lewy Bodies (DLB) because, technically, it is an atypical parkinsonism disorder while Parkinson's Disease Dementia (PDD) is not. The general term "Lewy Body Dementia" includes both DLB and PDD. Much of what's talked about in the morning will apply to those dealing with PDD but note that the focus is DLB. Most likely, all of the afternoon will apply to those dealing with PDD.

If you are dealing with a general diagnosis such as "atypical parkinsonism," "Parkinson's Plus," or "some type of parkinsonism, not typical PD," or if you are dealing with an either/or diagnosis such as "either PSP or MSA" or "either PSP or CBS," we suggest you ask your neurologist which break-out session you should attend -- DLB, PSP, MSA, or CBS/CBD. Please ask your neurologist before you register!

Find a short overview of the four atypical parkinsonism disorders here. (Article begins on page 1.) Though the article includes "vascular parkinsonism," that disorder is not part of our symposium.

What Is Included. For families, there will be a small registration fee -- $35 for early-bird registrants, and $50 thereafter. That includes the day's program, continental breakfast, and a hot lunch.

The hotel's parking contractor does charge for parking. We will plan to validate the parking ticket at some point during the day.

For professionals wanting CEUs, there will be a slightly higher fee ($70 for early-bird registrants, and $80 thereafter).

Check-in and continental breakfast begin at 8am. This is a good time to visit exhibitor tables. The program begins at 9am. We will end by 5pm.

Register Now as space is limited. For those with the diagnosis, family members, and friends, the fees and deadlines are:

September 16 - $35 early-bird registration deadline
September 17 - $50 registration fee
October 5 - final registration deadline

There is no registration at the door. (Note that the deadlines are different for Professionals wanting CEUs, and for exhibitors/sponsors.)

Spread the word! Here's a flyer about the event.

If You Are Interested...

In exhibiting: There will be space for 8 exhibitors in the ballroom and 4 exhibitors in the lobby. Please contact Steven Russell [stevenwrussell gmail.com] if you'd like to exhibit at this event.

In receiving emails about future events: Join the "Stanford PD Info" email list. We send no more than four emails per month to this list.

 

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