APDA American Parkinson Disease Association
Information & Referral Center

Recently Diagnosed with Parkinson's Disease?

This page is focused on issues of the newly diagnosed, including Young Onset Parkinson's. At the bottom, are a few non-English language resources. More general information about Parkinson's disease can be found on our PD101 page.

Best Publications - Downloadable

Diagnosis Parkinson's Disease: You are Not Alone
Published by Parkinson's Disease Foundation, 2009.
This 30-page booklet serves to answer questions that may arise upon diagnosis.

Parkinson's Disease Handbook
Published by American Parkinson Disease Association, 2009.
This 44-page booklet reviews the symptoms, cause, and treatment of PD. There are also sections on social issues and patient support as well as a glossary of key terms.

Parkinson's Disease Q&A, Sixth Edition
Published by Parkinson's Disease Foundation, 2012.
This 68-page booklet answers the most frequently asked questions about PD symptoms, treatments, common problems and research.

Best Online Information

Guide for the Newly Diagnosed
Published by the Michael J. Fox Foundation.
This is a list of 45 questions and answers, applicable to someone newly-diagnosed with PD. It is a compilation of the experiences of six people with PD.

Best Online Lectures and Webinars

Diagnosis Parkinson's Disease: You are Not Alone
Produced by Parkinson's Disease Foundation, 2009.
This 25-minute video is a companion to Parkinson's Disease Q&A. It was created to provide some comfort and encouragement for a person who has just been diagnosed with Parkinson's disease. It includes testimonials from people with Parkinson's on how they learned to cope and live with the diagnosis, scientific and medical information from healthcare experts and helpful tips and resources. A DVD can be ordered from the Parkinson's Disease Foundation.

“Parkinson’s Disease - Introduction to Treatment”
Produced by Panorama Patient Network, 2017.
In this 12-minute video, neurologist Matt Stern, MD, explains how Parkinson’s disease is often best treated with a mix of medications.  Using low doses minimizes the risk of long-term side effects.  In the second half of the video, neurologist Susan Fox, MD, discusses the importance of lifestyle in dealing with Parkinson’s disease, emphasizing the importance of sleep and exercise.

Parkinson's Diagnosis - Real Life Stories
Published by Parkinson's UK.
There are over 50 online videos of people in the UK describing being diagnosed with PD.

Best Publications for Young Onset PD - Downloadable

"Young onset" is a loosely-defined term. In the medical community, it refers to those diagnosed with Parkinson's Disease at age 39 or younger. In the PD community, it often refers to those who were diagnosed with Parkinson's Disease at age 49 or younger. Whatever the age, this is the best print publication, offering basic information on YOPD -- perfect for someone newly-diagnosed with young onset PD. It is downloadable at no charge.

"Young Parkinson's Handbook: A Guide to Patients and Their Families"
Published by American Parkinson Disease Association National Young Onset Center, 2008.
This 53-page booklet provides the basics on PD and YOPD. There are also chapters on mind, memory, and behavior as well as changing roles and relationships.


Non-English Publications

“10 cosas que puede hacer ahora!” (in Spanish)
Published by American Parkinson Disease Association
This 2-page brochure verifies that most people with PD can live well for many years with a positive attitude and good health care habits.  It suggests 10 ways to take action toward living well with Parkinson’s disease.

An Introduction to Parkinson's Disease (in Chinese - complex characters)
Published by American Parkinson Disease Association, 2009.
This 4-page introduction to PD was translated into Chinese. (The English language 4-page introduction is also provided.)

 

Last updated by Denise Dagan and Robin Riddle for Stanford Parkinson's Community Outreach, January 2017.

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