APDA American Parkinson Disease Association
Information & Referral Center

Online Parkinson's Disease Support Groups

Daily Strength's PD Support Group
Good exchange of practical information, sharing of experiences and support, and occasional inspirational posts. 207 members in PD support group.

DBSsurgery Yahoo! Group
Moderated group for the discussion of deep brain stimulation surgical procedures in the Messages area of a Yahoo Group. In addition, its Files, Photos, Links, Database, and Polls areas are full of member and moderator shared sources of DBS information. You must be a member to read or post. 1949 members.

npf-logoNPF's Open Forum
Unmoderated posts on a variety of PD-related and non-PD-related topics including announcements, website surveys, sharing personal stories, inspirational postings (music, poems, humor), treatments, medical news, and advertising.

NPF's Young Onset Forum
Unmoderated posts on a variety of YOPD-related and non-YOPD-related topics including announcements, website surveys, sharing personal stories, inspirational postings (music, poems, humor), treatments, medical news, and advertising.

Parkinson's UK Forum
Moderated sections include Daily Life, Health & Wellbeing, Newly Diagnosed, Caregivers, Friends & Family, Treatments, Creative Corner, and Social Chat.

patientslikeme-logoPatientsLikeMe Forum
Unmoderated posts on a variety of PD-related and non-PD related topics. Members 'tag' their postings with relevant subject titles, suggested by the site, so visitors to the forum can search for or filter 'tags' they are interested in. Must be a member to read or post to the forum. 14,773 PD patient members.

Smart Patients
Moderated posts of a number of communities around different illnesses, including Parkinson’s disease.
Membership is disease-specific.  If you enroll in the Parkinson’s peer support group, those are the only conversations you will see and respond to.  You can start a conversation or join in any of several ongoing conversations.  Participants, including the moderator, often post links to research articles or from reputable organizations, like the National Parkinson Foundation, in support of their advice.


This information compiled by Denise Dagan with Stanford's APDA I&RC, March 2012. Updated by Denise Dagan, February 2017.

Design support by Kevin T. Boyd

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