APDA American Parkinson Disease Association
Information & Referral Center

Online Parkinson's Disease Support Groups

dailystrength-logoDaily Strength's PD Support Group
Good exchange of practical information, sharing of experiences and support, and occasional inspirational posts. 1400 members in PD support group.

DBSsurgery Yahoo! Group
Moderated group for the discussion of deep brain stimulation surgical procedures in the Messages area of a Yahoo Group. In addition, its Files, Photos, Links, Database, and Polls areas are full of member and moderator shared sources of DBS information. You must be a member to read or post. 1724 members.

npf-logoNPF's Open Forum
Unmoderated posts on a variety of PD-related and non-PD-related topics including announcements, website surveys, sharing personal stories, inspirational postings (music, poems, humor), treatments, medical news, and advertising.

NPF's Young Onset Forum
Unmoderated posts on a variety of YOPD-related and non-YOPD-related topics including announcements, website surveys, sharing personal stories, inspirational postings (music, poems, humor), treatments, medical news, and advertising.

Parkinson's UK Forum
Moderated sections include Daily Life, Health & Wellbeing, Newly Diagnosed, Caregivers, Friends & Family, Treatments, Creative Corner, and Social Chat.

patientslikeme-logoPatientsLikeMe Forum
Unmoderated posts on a variety of PD-related and non-PD related topics. Members 'tag' their postings with relevant subject titles, suggested by the site, so visitors to the forum can search for or filter 'tags' they are interested in. Must be a member to read or post to the forum. 6074 PD patient members, 1108 Caregiver members, and 642 guests.

 

 

This information compiled by Denise Dagan with Stanford's APDA I&RC, March 2012.

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