APDA American Parkinson Disease Association
Information & Referral Center

Some of Our Favorite PD Blogs

These blogs are written by those with PD, PD researchers, or PD organizations. Blog posts address living with PD.

 

Defeat Parkinsons
Blogger: Dr. Maria De Leon, retired movement disorder specialist and young onset Parkinson’s patient
Frequency: Bi-weekly
Examples of topics: medication management; dental hygiene; tips for good sleep; treatment of overactive bladder; end-stage Parkinson’s disease; tardive dyskinesia; combating apathy; weight gain after DBS in women; and women’s health and sexuality.series.

 

Journey with Parkinson’s
Blogger: Frank Church, professor and researcher in the School of Medicine at the University of North Carolina, Chapel Hill, and young onset patient
Frequency: Monthly
Examples of topics: my public journey and life-steps with Parkinson’s; service and research; milestones in Parkinson’s disease research and discover; MAO-B inhibitors; and the VA “My Parkinson’s Story” video series.

 

dpflogo Living Well Today, byThe Davis Phinney Foundation
Bloggers: Staff writers and guest authors
Frequency: Once/month
Examples of topics: Using a service dog; separating fact from online fiction; tips for more expressive communication; how exercise can ease anxiety in PD.

 

My Parkinson’s Story, by the Veterans Health Administration
A series of 20 short videos on various aspects of living with Parkinson’s disease.
Examples of topics: DBS; early and advanced stages; depression; thinking and memory; sleep; driving; exercise; hospitalization; impulsive behavior; medications; the caregiver; speech and swallowing; genetics; environmental exposure; dyskinesias; pain; and visual disturbances.

 

Out-thinking Parkinson’s
Blogger: Gary Sharpe, PhD scientist, engineer and young onset patient, and Deb Helfrich, author and wellness mentor
Frequency: Weekly
Examples of topics: how a dog in the family helped me to understand my Parkinson’s disease; a unified explanation for Parkinson’s disease via the vagus nerve;  and helicobacter pylori bacteria in the gut and Parkinson’s disease; and women’s health and sexuality.series.

 

Parkinson Alliance Blog
Bloggers: Margaret Tuchman and Gloria Hansen with guest authors
Frequency: Monthly
Examples of topics: social support and Parkinson’s disease, the patient’s perspective; cognition and Parkinson’s disease, the patient’s perspective; the risk of undertaking a clinical trial; mindfulness and Parkinson’s disease; and goodbye Parkinson’s hello life.

 

Parkinson.FIT
Blogger: Brett, young-onset person with Parkinson’s
Frequency: Bi-monthly
Examples of topics: skiing with Parkinson’s disease; running with Parkinson’s disease; PD101: exercise, medication, nutrition & lifestyle; how much should I exercise for PD?

 

The Parkinson’s Fitness Project
Bloggers: Nate Coomer, Physical Therapist, and Jennette Malsbury, Nutrition Health Partner
Frequency: Monthly
Examples of topics: leaky gut, what it is and 3 steps to get your tummy on track; understanding the reasons behind low BP with PD; amplitude training, why you should be thinking BIG; exercise for the mind, tips for training.

 

Parkinson’s Journey
Blogger:  Sherri Woodbridge
Frequency:  Bi-weekly
Examples of Topics:  what are the odds of developing Parkinson’s disease; a slithering snake, a two-year-old, and his granny; poetry; photography; DBS; for the caregivers; a thing about nurses; and non-parkinson’s related writings.

 

Parkinson’s Women
Blogger: Darcy Blake, a woman with PD
Frequency: Weekly
Examples of topics: political activism; Parkinson’s Women Support new chapters; not my mother’s PD, a mother/daughter PD comparison; personal DBS experience; and new research leading to better management of Parkinson’s disease.

 

The Perfect Servant - nope
Blogger: Liz Galisteo, Parkinson’s caregiver, sculptor, and author
Frequency: Weekly
Examples of topics: respite; fluctuating cognition; self-care; caregiver’s fluctuating emotions; emergency room visits; when your caree is sick in addition to Parkinson’s disease; mis-taken medications; traveling with PD; eating out; and social awkwardness.

 

The Science of Parkinson’s disease
Blogger: Simon, postdoctoral Parkinson’s researcher and president of his Parkinson’s UK support branch
Frequency: Bi-weekly
Examples of topics: trying to digest gut research; improving patient education; wearable tech 4 Parkinson’s; stress and Parkinson’s disease; old dogs new tricks, repurposing drugs for Parkinson’s; and milestones in Parkinson’s disease research and discovery.

 

Twitchy Woman
Blogger: Sharon Krischer
Frequency: Weekly
Examples of topics: PD boxing packs a punch; exercise can be a boon to people with Parkinson’s disease; 100 (posts) and counting; book reviews and recommendations; World Parkinson’s Conference seminar notes; and exercise and PD.

 

This resource list was created by Denise Dagan with Stanford's Parkinson's Outreach Program, May 2017..

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