Stanford Parkinson's
Community Outreach

Some of Our Favorite PD Blogs

These blogs are written by those with PD, PD researchers, or PD organizations. Blog posts address living with PD.

A Simple Island Life
Blogger: Kai Rubenstein, person with Parkinson’s
Frequency: Weekly
Topics covered: lower protein meals, losing your sense of smell and taste, selection of recipes and gardening posts, staying connected to your partner, foot stretches and exercises, balance, urinary urgency, getting dressed, exercise, staying positive, learning to fall, participating in clinical trials, tech tools for PD, meditation, and more.  

 

Defeat Parkinsons
Blogger: Dr. Maria De Leon, retired movement disorder specialist and young onset Parkinson’s patient
Frequency: Bi-weekly
Topics covered: medication management; dental hygiene; tips for good sleep; treatment of overactive bladder; end-stage Parkinson’s disease; tardive dyskinesia; combating apathy; weight gain after DBS in women; and women’s health and sexuality.series.

 

Journey with Parkinson’s
Blogger: Frank Church, professor and researcher in the School of Medicine at the University of North Carolina, Chapel Hill, and young onset patient
Frequency: Monthly
Topics covered: my public journey and life-steps with Parkinson’s; service and research; milestones in Parkinson’s disease research and discover; MAO-B inhibitors; and the VA “My Parkinson’s Story” video series.

 

dpflogo Living Well Today, byThe Davis Phinney Foundation
Bloggers: Staff writers and guest authors
Frequency: Once/month
Topics covered: Using a service dog; separating fact from online fiction; tips for more expressive communication; how exercise can ease anxiety in PD.

 

My Parkinson’s Story, by the Veterans Health Administration
A series of 20 short videos on various aspects of living with Parkinson’s disease.
Topics covered: DBS; early and advanced stages; depression; thinking and memory; sleep; driving; exercise; hospitalization; impulsive behavior; medications; the caregiver; speech and swallowing; genetics; environmental exposure; dyskinesias; pain; and visual disturbances.

 

Out-thinking Parkinson’s
Blogger: Gary Sharpe, PhD scientist, engineer and young onset patient, and Deb Helfrich, author and wellness mentor
Frequency: Monthly
Topics covered: how a dog in the family helped me to understand my Parkinson’s disease; a unified explanation for Parkinson’s disease via the vagus nerve;  and helicobacter pylori bacteria in the gut and Parkinson’s disease; and women’s health and sexuality.series.

 

Parkie Support
Blogger: Fran Lo, a person with Parkinson's (PWP)
Frequency: Weekly
Topics covered: how to find a support group, how to find PD-specific exercise classes, support for Parkinsonisms, finding a physical therapist, online support communities, books and online resources for finding out about symptoms and treatments, what the different and various foundations for PD actually do.

 

Parkinson Alliance Blog
Bloggers: Margaret Tuchman and Gloria Hansen with guest authors
Frequency: Monthly
Topics covered: social support and Parkinson’s disease, the patient’s perspective; cognition and Parkinson’s disease, the patient’s perspective; the risk of undertaking a clinical trial; mindfulness and Parkinson’s disease; and goodbye Parkinson’s hello life.

 

Parkinson.FIT
Blogger: Brett, young-onset person with Parkinson’s
Frequency: Bi-monthly
Topics covered: skiing with Parkinson’s disease; running with Parkinson’s disease; PD101: exercise, medication, nutrition & lifestyle; how much should I exercise for PD?

 

The Parkinson’s Fitness Project
Bloggers: Nate Coomer, Physical Therapist, and Jennette Malsbury, Nutrition Health Partner
Frequency: Monthly
Topics covered: leaky gut, what it is and 3 steps to get your tummy on track; understanding the reasons behind low BP with PD; amplitude training, why you should be thinking BIG; exercise for the mind, tips for training.

 

Parkinson’s Journey
Blogger:  Sherri Woodbridge
Frequency:  Bi-weekly
Topics covered:  what are the odds of developing Parkinson’s disease; a slithering snake, a two-year-old, and his granny; poetry; photography; DBS; for the caregivers; a thing about nurses; and non-parkinson’s related writings.

 

Parkinsons Movement
Blogger:  Moderated member forum (14,285 members)
Frequency:  Continuous
Topics covered: Parkinson’s movement, best practices (diet, laser shoes, exercise), personal experience (travel), research, symptoms (anxiety, sleep, tremor) and treatments.

 

The Parkinson’s Report
Blogger: Hannah Grassie, speech language pathologist (SLP)
Frequency: Irregular
Topics covered: picking your care team, modifying your day to adapt to PD, how professionals should prepare someone with PD for an assessment, getting involved with the PD community, balancing PD with family life, 5 ways to up your goal writing game, untangling PD medical speak, cognitive changes, young onset PD, dysphagia, clinical tools to stay informed about PD, vocal changes in PD, how to prepare for Dr. visits, apathy, and more.

 

Parkinson’s Women
Blogger: Darcy Blake, a woman with PD
Frequency: Weekly
Topics covered: political activism; Parkinson’s Women Support new chapters; not my mother’s PD, a mother/daughter PD comparison; personal DBS experience; and new research leading to better management of Parkinson’s disease.

 

PD Movement Lab
Blogger: Pamela Quinn, former professional dancer turned movement therapist for people with Parkinson’s disease after being diagnosed with Parkinson’s, herself
Frequency: Monthly
Topics covered: balance; early onset PD; PD outliers; dosing; hospital visits; Parkinson’s and music; gait; arm swing; rigidity; festination; the physical logic behind problem movements

 

The Perfect Servant - nope
Blogger: Liz Galisteo, Parkinson’s caregiver, sculptor, and author
Frequency: Weekly
Topics covered: respite; fluctuating cognition; self-care; caregiver’s fluctuating emotions; emergency room visits; when your caree is sick in addition to Parkinson’s disease; mis-taken medications; traveling with PD; eating out; and social awkwardness.

 

The Science of Parkinson’s disease
Blogger: Simon, postdoctoral Parkinson’s researcher and president of his Parkinson’s UK support branch
Frequency: Bi-weekly
Topics covered: trying to digest gut research; improving patient education; wearable tech 4 Parkinson’s; stress and Parkinson’s disease; old dogs new tricks, repurposing drugs for Parkinson’s; and milestones in Parkinson’s disease research and discovery.

 

Twitchy Woman
Blogger: Sharon Krischer
Frequency: Weekly
Topics covered: PD boxing packs a punch; exercise can be a boon to people with Parkinson’s disease; 100 (posts) and counting; book reviews and recommendations; World Parkinson’s Conference seminar notes; and exercise and PD.

 


This resource list was created by Denise Dagan with Stanford's Parkinson's Outreach Program, May 2017..

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